Building a National Strategy for Drugs for Rare Diseases: What We Heard from Canadians

Building a National Strategy for Drugs for Rare Diseases: What We Heard from Canadians Canadians with rare diseases want access to drugs that could help manage and treat their conditions. Those drugs, however, can be extremely expensive. Advisory Council on the Implementation of National Pharmacare recommended creating a national strategy for providing fair, consistent and evidence-based access for patients to these specialized drugs. In response, the Government of Canada made a commitment to work with provinces, territories and other partners to create a national strategy for drugs for rare diseases. 2021-11-01 Health Canada open-ouvert@tbs-sct.gc.ca Health and Safetynational strategy for drugsrare diseasesspecialized drugsdrugs for rare diseaseswhat we heardaccess to drugsAdvisory CouncilNational Pharmacarefair accessconsistent accessevidence-based access for patients Building a National Strategy for Drugs for Rare Diseases: What We Heard from CanadiansHTML https://www.canada.ca/en/health-canada/programs/consultation-national-strategy-high-cost-drugs-rare-diseases-online-engagement/what-we-heard.html Building a National Strategy for Drugs for Rare Diseases: What We Heard from CanadiansHTML https://www.canada.ca/fr/sante-canada/programmes/consultation-mobilisation-ligne-strategie-nationale-visant-medicaments-onereux-maladies-rares/ce-que-nous-avons-entendu.html

Canadians with rare diseases want access to drugs that could help manage and treat their conditions. Those drugs, however, can be extremely expensive. Advisory Council on the Implementation of National Pharmacare recommended creating a national strategy for providing fair, consistent and evidence-based access for patients to these specialized drugs. In response, the Government of Canada made a commitment to work with provinces, territories and other partners to create a national strategy for drugs for rare diseases.

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